Part 2: I want to hear from YOU!

Thank you SO much to those of you who answered my first question about the challenges of living with celiac! I received many emails, comments, social media responses etc. It’s so wonderful to hear your thoughts and see how we can all relate! I can’t wait to share all the answers with you! If you didn’t answer last week’s question, you can do so here!

Celiac disease awareness month is coming up in May, so I thought I would compile various answers from you and create different posts on a few topics relating to living with celiac disease.

I want YOU to share YOUR feelings about living with the disease… this way we can see we’re not alone!

The second question:

“When I get glutened, the one thing that helps most is ______.”

Your answers will be published in a blog post in May and will be anonymous, so if you’re uncomfortable leaving a comment here, please feel free to email me (

I LOVE hearing from you and I know that your responses truly help others living with celiac!

Thanks for your help!




  1. Toni says:

    When I have gluten accidentally get into my diet,, it not only gives me hundreds of tiny blisters on my palms and fingers that burst and then peels ( a total of 3 week’s to heal) but it creates havoc in my GI track , after 2 days it’s so very painful to have a bowel (because of the diarrhea , I have a prolapse rectum )that when anything passes I must immediately get into a scolding hot bathtub ,, it’s an instant relief and I only need to be there maybe 5 minutes but on bad days it’s as many as 10 times,, now that I understand what causes it I can keep it from getting that
    bad. ( a dermatologist diagnosed it after seeing GI Dr’s for 8 yrs,, 4 colon scopes and even blood transfusions because I was bleeding so bad from my rectum and when the blisters made my hands so raw ,, my wholegs problem was GLUTEN )I’m finally on my way to feeling better !

  2. Mari says:

    I take Alka Seltzer Gold and lie down. I try to get as much rest as possible. I drink more water than usual over the course of the next few days. I try to avoid my family so my mood swings don’t get inflicted on them. I also try to figure out what I ate that might have done it, so I don’t do it again. Mostly I try to avoid eating out because being glutened is hell. If it happens at home, that’s harder to track down since for the most part we are gluten free at home. Recently I was having a lot of problems, and I figured out that it was the bird seeds for our pets. I try to be scrupulously careful washing my hands after I feed them, but if I get distracted, it doesn’t happen, and the probability of getting glutened goes up. It’s so easy to forget and then eat before I’ve washed my hands. I put post it notes on the food buckets and in the bathroom so I remember to wash my hands thoroughly. It helps me to remember that it isn’t always what I eat that affects me. What I touch can be just as bad. Ugh!

  3. Diane says:

    Nothing will take the pain & suffering away, but I’ve found I can lessen it by taking activated charcoal & digestive enzymes. And I use essential oils topically on my abdomen also.

    • msmodify says:

      I’ve never tried activated charcoal (although I hear great things about it!) but I do use essential oils topically and they really help!

  4. Kristy from Southern In Law says:

    When I get glutened, the one thing that helps me most is anything to control the nausea. Peppermint, ginger, nausea medications. Everything else I can’t really do anything about but the nausea I can at least minimise… a little!

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