That’s right… I want to hear from YOU! If you’ve been a reader since last year, then this may look familiar to you. May is Celiac Disease Awareness Month and I want to make sure we shed light on the illness, as well as help to empower those living with it!
Last year I compiled various answers from you and create different posts on a few topics relating to living with celiac disease. I was trying to decide if I would ask you different questions or stick with the same ones… I decided to ask the same ones.
Here’s my reasoning why I’m sticking to the questions… first of all, I don’t know about you but my feelings and knowledge regarding living with celiac are constantly changing. So, I figure even those that answered last year will have different feelings and responses this year. My second reason for asking the same questions this year, is that last year I received SO many insightful, heartfelt responses that I thought it would be incredible to add to the lists and help create this very personal resource for people living with celiac.
I don’t know about you… but there is only so much I learn from my doctor.
Sometimes A lot of times, I feel like he just doesn’t “get it” (if you know what I mean)… what better than having a great resources guide about living with celiac, from people that actually have or are directly affected by it!?
I want YOU to share YOUR feelings about living with the disease… this way we can see we’re not alone!
The first question:
“The most challenging aspect of living with celiac disease is ___.”
Your answers will be published in a blog post in May and will be anonymous, so if you’re uncomfortable leaving a comment here, please feel free to email me (firstname.lastname@example.org).
If you don’t have celiac, but are a parent of a child…a spouse… a friend… etc… please to share what’s challenging for you!
**This first question is a little ironic for me, because if you follow me on Instagram or Facebook, then you know I’ve been incredibly sick this week from getting “glutened”… worst part is I can’t figure out what I ate that caused it. Regardless, this is the sickest I’ve been in years from my celiac. Luckily, 9 days later I’m starting to finally feel like myself again!
I shared this info on my social media… and the comments, DMs and emails I received with words of encouragement, tips, letting me know they’re praying for me and just checking in to see how I am doing just warms my heart so much. Living with an autoimmune disease can often be isolating and hard for others to relate, but because of this amazing community we have, I no longer feel alone.
I LOVE hearing from you and building this incredible community with you! 🙂